Skip to main content

April is Sjögren's Syndrome Awareness Month

It's the start of Sjögren's Syndrome Awareness Month and it's no joke.

For my first post on Sjögren's Syndrome, I'm going to list some key facts about it.

  1. It's pronounced "show-grins".

  2. The disease was first identified in 1933 by Dr. Henrik Sjögren.

  3. In the U.S. alone over 4 million Americans have Sjögren's, yet it is virtually unknown or completely misunderstood by the medical community. In contrast, only about 250,000 Americans have Multiple Sclerosis.

  4. 90% of sufferers are female. I'll talk more about this in a later post regarding Sjögren's impact on sexual intercourse, which may also help women who don't have Sjögren's.

  5. Those who have heard of it think it's just dry eyes and a dry mouth, but it's actually an autoimmune disease. Other autoimmune diseases you may have heard of include multiple sclerosis, lupus, rheumatoid arthritis, celiac's disease, mixed connective tissue disorder, scleroderma, Epstein Barr, Addison's disease, Grave's disease, Hashimoto's disease, inflammatory bowel syndrome, pernicious anemia, Raynaud's phenomena, sarcoidosis, psoriasis, and diabetes. There are probably more than those and I apologize if I missed one.

  6. Sjögren's is actually the third most prevalent of all rheumatic autoimmune diseases, surpassed by Lupus and rheumatoid arthritis.

  7. The only celebrity that is currently known to suffer from it is female tennis player Venus Williams.

  8. The best resource for information on Sjögren's Syndrome is the Sjögren's Syndrome Foundation. They publish a handbook with the most accurate information.


More to come in the month ahead. There's a lot more to know, but I figured a little bit at a time is best.

Ciao,
R~

Comments

Popular posts from this blog

A Lot of Bullspit - 2020 ROW80 R3-W5

This week has had a lot of bullspit in it. Shortly after my last trip to buy reno supplies, I discovered mold in my bathroom. While that's not shocking, it's pretty much because they appear to have left wet drywall in the wall and covered the wall with another layer of drywall instead of properly repairing it after a leak. Geniuses. This is a mixed bag. It means I may have to do the tub area sooner than I expected. It is the same wall as the annoying peeling paint, so that's kind of good. I may just need to replace much of the wall, which is about 1.5 drywall boards because it's a small room. Cost wise, the wall repair isn't so bad. I'm not looking forward to having to deal with it, but I acquired the PPE gear for it and the mold removal supplies. Now, here's where the project may change substantially. I was originally planning to install a tub surround over the tile and then use the Rust Oleum tub restore stuff, but if there is mold in the wall, it's li

ROW80 2020 R4 - GOALS

I've gotten zero writing done recently, however, I had other pressing things.  HOME As my new bed frame was due for arrival last Friday (more on this later), I hauled ass and purged a bunch more stuff from my home. I brought a full carload to donation and started loading up again. I also dealt with my old mattress, which I'm repurposing for a couch. Now, I didn't fully complete it as I haven't figured out all the pieces, but I did get it cut up appropriately and moved out of my bedroom. I'm currently sewing it back together. As for my bedroom, I was able to do a major declutter and access areas I haven't been able to in months. But that area now has bathroom stuff in it. There is more to do, but I'm really happy with my progress of late. I've cut myself numerous times on the couch project including my heel finding a tiny piece of glass, my palm finding a wayward staple, my knuckle finding who knows what, my one thumb having a run in with a box cutter, an

Catching My Breath - 2020 ROW80 R3-C6

 I've tried writing this post numerous times, but I needed a break. A long one. I've been mega stressed out and depressed, so I have been taking a little breather. I was feeling broken, but the experience has forced me to slow down and relax. I've gotten some help including medication for it and I am feeling much better. I'm feeling like myself more with each passing day. I'm sleeping better and have energy again.  I have been reducing my social media time. Especially Facebook. Actually, I enjoy Instagram much more. FITNESS I've been scooting and I'm getting back into skating. It's often hard to get out because of rain. Eventually, I want to do tricks on my skates. This skater may not be in derby anymore, but she's still a skater ;) I have a ton of plans for cross training once winter is here. I'll be hitting up outdoor rinks if they are available, but I'm also going to work on off skate skills that will help me get to doing tricks later on.