Skip to main content

Thoughtful Thursday - Itch from Hell



Sometimes, when I have a bad day, I think I'm the target of some cruel joke. My life hasn't turned out the way I planned. Some things are going well. I've gotten some short stories published and will have books in my hands very soon that I can sell to fund my novel. That's surreal. I need someone to pinch me so I know I'm not just having a good dream.
My health is an area that makes me really sad at times. It's where I keep taking the most hits. I started having symptoms at age 14. My parotid salivary glands would swell up. It's always painful when that happens.

In my twenties, I experienced an episode of sleep paralysis while hallucinating. It wasn't until about 5 years after that, they said I had narcolepsy. I lived with that for 3 years until no stimulant medication helped and I had the symptoms of stroke so took myself off the meds. My body had decided it wasn't narcoleptic anymore. This was all proven both times by the tests.

After that it was discovered that I was sensitive to dairy, eggs, and yeast. That has been a fun diet.

Next, I began having joint pain. I remembered during a check for carpal tunnel in my twenties that I had a positive RA factor. So I got some blood tests done and was sent to a rheumatologist. 

Many of my symptoms match an autoimmune disorder. One that features dryness, so stimulants were about the worse thing I could be on. The trouble is that my body is again rejecting medication. Rather violently through a rash. As a baby, I reacted this way to penicillin.

So I'm at a loss right now as I feel rather like I'm in hell. I've been reacting since the 8th, despite hydrocortisone cream, allergy medicine, baking soda baths, tea tree oil, antifungal cream, aloe, calamine, apple cider vinegar, and diaper rash cream.

It's clear my body is pissed off for some reason.

I see my specialist tomorrow. Hopefully she'll know what to do. 

Until then, I expect to have another night of difficulty sleeping. 

I wish I could trade skin with someone.

I'm exhausted but too itchy to sleep and I just want to cry.

R~

Comments

Popular posts from this blog

Hanna "Semi Precious" Murphy

A legend in the roller derby community is gone. How and why, I do not know. What I do know is that many are reeling from the news, myself included. 
Hanna was known for big hits and a brilliant personality. I experienced her hits first hand as she sent me flying a number of times. Then she'd smile and make sure I wasn't hurt. 
I stumbled onto this clip on Youtube from 2012 and I think it shows Hanna as many knew her.
She was a force off the track too.
As a cofounder of the award-winning Top Shelf Distillers, she gave much to the surrounding Ottawa Valley community.  
Hanna was a relatively petite woman and it was she who taught me that I could be mighty despite my size. I wouldn't be the woman I am today if I hadn't had the pleasure and the privilege of sharing the track with her. 
I'm shocked. I'm sad. I'm upset I'll never see her or speak to her again. 
R.I.P. #10.

Rae-Rae

Change is in the Air

I've been making a lot of changes lately around my home and some of them might seem a little odd, but they're making me happy. One thing I've done is taken apart my dining table. I never eat in there or have people over to eat. It was just another horizontal surface that would collect things like receipts, odd screws from various projects, and countless piles of paper. I had been frustrated because of the clutter it encouraged, but also because I didn't have a space for my Yamaha keyboard. I had been trying to use my keyboard in the living room, but it felt too cluttered and it wasn't sitting at the right height. With it now in my dining room, I was able to relocate my storage bench, which happens to be the perfect height to sit at while playing my keyboard. I now have much more breathing room. There is still a lot of mess to handle here yet, but I'm making solid progress. A lot of people suggest the bedroom is the place to start when decluttering, but I haven&…

Feeling My Age - ROW80 2020 R1-4

I've reached the age where my body has decided to have issues. Not constantly, but frequently. Sprinting for a bus can leave me with an injured ankle simply from using it, not from actually twisting it in ways it shouldn't move, just a fairly normal activity. I guess I need to warmup and stretch before walking to the bus now. About a decade ago, I was given a guard for my teeth due to grinding. And for the next month, I need to sleep with wrist braces because my doctor thinks I'm developing carpal tunnel. Really, I'm surprised it hasn't happened before now given my level of computer use. My mom had it years ago and had to have surgery. From reading books of all things. Anyway, he thinks if I sleep with braces on that it may be enough to keep it at bay because the nerves will get 7-8 hours of rest. After 4 days and nights, the tingling has been reducing, so I'm hopeful.
"Your body is like an elastic." -Georges St. Pierre I recently stocked up on health…